罕见病药物氨己烯酸片可以报销吗

It can be used for auxiliary treatment of anti-epilepsy, auxiliary treatment of partial seizures of refractory complex epilepsy, and can also be used to treat infantile spasms and Lennox-Gastaut syndrome, and for tardive dyskinesia. In August 2009, vigabatrin tablets were approved by the FDA for marketing. In January 2019, the FDA approved the generic version of vigabatrin. It is understood that the current specification of vigabatrin tablets produced by France's Sanofi is 500mg*100 tablets, and the price is around $1,500. The price may change due to various factors such as exchange rates.

Many patients will ask if they can be reimbursed after seeing the price of vigabatrin tablets. You must know that vigabatrin tablets are not currently on the market in my country, so they are not covered by my country's medical insurance, so reimbursement cannot be made. If it is inconvenient for patients to go abroad to purchase, they can purchase genuine vigabatrin tablets through Yibenlv, a formal overseas medical consulting service company in China.

Vigabatrin tablets need to be started under the guidance of a doctor with experience in treatment. The recommended dosage is as follows: the maximum daily dosage for adults is 2-3g. The appropriate dosage is 1g a day at the beginning. Then based on the response after taking the medication, if the response is good, it can be increased by 0.5g per week, and finally reaches a dosage of 2-3g per day.

The recommended dosage for children is 40 mg/kg/day. Continuous medication should be judged based on the patient's weight. The recommended dosage for children weighing 10-15kg is 0.5-1g/day; the recommended dosage for 15-30kg is 1-1.5g/day; the recommended dosage for 30-50kg is 1.5-3g/day; >50kg 2-3g/day.

If the patient has special circumstances, he or she needs to inform the doctor before starting treatment, and the doctor will make adjustments to the patient's medication based on the actual situation to avoid harm to the patient due to incorrect medication.

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